Start Listening

I have never felt so helpless in front of another human being.

I have been a child, strapped into a highchair or a car seat, wriggling for freedom to run and play. I have been a teenager, full of angry hormones, shouting and demanding independence and insisting I know best, met with inflexible rigidity. I have been a woman, crippled with labour pains, fighting against my own body for release and comfort. But standing in front of you, I have never felt so acutely another persons hands wrapped casually around my heart.

You are my sons teacher. But I am his mother. To you, that title may not mean much. Yes I gave birth to him, but I do not have any qualifications or certificates to prove my worth. I don’t have years of experience or references from children now grown. I don’t have a shiny laminated badge with my credentials, and I can’t issue you a formal letter with expectations or give you any funding or resources.

But that title. That word. Being a mother to that little boy means I know. I know the obstinate way he mutters under his breath crossly when he’s done something naughty, I know that as soon as we walk in a room he will be counting the lightbulbs, (including which ones are faulty.) I know from how far his head is tilted to the right how much difficulty he is having seeing something, and I know from the subtle head wobble when he is too tired to try. I know when his frustration at being left out or overwhelmed is causing naughty or difficult behaviour, and I know when it’s just a symptom of the dreaded threenage years like any other fully sighted child.

You are his teacher. But I am his advocate. I’m the only one he has. And it’s a ferocious balancing act throughout which I’m scared nearly all the time.

Scared to argue my case, because I know that we’re paired together my son and I. Who knows how I could unintentionally offend you and without any malice on your part, have it taken out on my helpless child? Frightened of not saying enough, and leaving him without the same opportunities that so many other children and parents take for granted. Practising with my husband in the morning before I approach you, trying to find that elusive tone of voice, or expression that will make my words appeal to you. Hoping that you will put aside the issues of resources and check-boxes, and just look at this mother who has no pride, and would crawl over hot coals if it meant that you would believe she isn’t hysterical, she isn’t trying to upset you or make your life harder, she’s just acting on the most basic instinct on the planet, that of a mother protecting her young.

I am one of thousands of mothers whose child needs that bit of extra help. We shouldn’t have to write letters or shout loudest or cry tears to be heard. We shouldn’t have to pick our battles and decide which parts of our children’s school life aren’t as important for them to access if it turns out that we can’t fight for them all. We certainly shouldn’t have to feel scared that we’re going to be ignored or condescended to or fobbed off with excuses when we summon up the strength to stand our ground against the system.

But in a world where these situations are often the sad reality, please acknowledge how it takes immeasurable courage for me to approach you. I am the advocate for my son. I’m the only one he has. For the time being, I am not only his eyes, but also his voice. And I’m asking you to stop simply hearing me, and start listening.

The Chocolate Wars

I have a pretty enviable three year old, who does what he is told. He looks for my hand as soon as we get near a road or into a car park, he isn’t a screamer or prone to tantrum, he always says thank you, and he never ever takes things without asking.

Well, he never used to,  anyway.

The last two weeks I have woken up in the morning to various ‘surprises’ in the kitchen. Empty wrappers, chocolate crumbs, empty spaces where expensive imported treats used to be.. All before 7am. After receiving various pieces of advice, I decided to chronicle the events, for other judgemental parents worldwide, and as a testament to the last few weeks of my life-if as I suspect, the stress of this early morning battle of wills actually forces me into an early grave.

Sunday May 11th
Hubby calls me into the kitchen, to be greeted by a virtual mountain of Reese’s cup wrappers. I count the damage, 9. I’m torn between shock that he would take them and eat them without asking, and hope that I don’t have to deal with projectile vomiting elsewhere in the house. I go find R, and after naughty corner, sternly tell him it is not acceptable behaviour, and there will be no treats for the rest of the day, and take away a stuffed toy. No tears from him, but those punishments are usually the end of it in our house, so I get on with the day.

Sunday May 18th
Had almost forgotten about last week’s ‘mishap.’ About 7.30am, I went to throw some rubbish in our kitchen bin, and was confronted by an empty bag of giant milky bar buttons. A bag I could have sworn had been half full. So unsure that it would have happened again, my first instinct was to ask the other man in our house. “Darling?” I called through the bathroom door. “Did you wake up in the night with the munchies, and finish off half a bag of giant milky bar buttons?” Surprisingly, my hubby was not the culprit.

This time I got really angry. Especially after asking R if he’s eaten anything from the kitchen and getting a negative response. Stealing, Lies, Deception tactics… was my son on the road to a juvenile detention centre?! Overreactions aside, (after three minute naughty corner for us to confab) this time we took away iPad, (more of a punishment for us frankly) and favoured toys for a week. Niggling thought in back of head that we needed a consistent punishment if this was going to become a habit. Also occurred to us that taking away treats doesn’t really work when the child in question has already had more chocolate that morning than you would ordinarily allow in a week.

Monday May 19th
“He’s done it again.”
No one wants to wake up to those words. Not for the second day in a row. I blearily went into the kitchen, to find a Musketeers Bar gnawed on on the floor. Should I be glad he at least didn’t try to hide it today? Unimpressed by the peanuts, he had bitten off all the surrounding chocolate, leaving a pile of shavings on the floor. I literally gave birth to a hamster. Sigh.
Again, he denied it, even when faced with the evidence. He started pulling funny faces, looking cross, and basically acting.. well.. three. Eventually I was rewarded with the indignant, “What?! I was so hungry!” which surprisingly didn’t make me feel any better, especially as he had been given a full cup of Cheerios about a half hour beforehand, still untouched in his bedroom. We decided on a consistent punishment, but I have a feeling it’s more about getting through to him.

I turned to social media, and as we all do, asked a question I already had my own opinion on, and waited for someone to agree with me. Should I move the choc to a cupboard out of his reach, or find a consistent punishment and stick with it? I had an overwhelming response towards option number one. Nearly everyone agreed that he was too little to deal with the temptation, and I was causing myself more hassle than necessary trying to get the message into his little boy head.

Of course, like the majority of us, I couldn’t care less what anyone else’s thoughts about my parenting are, and decided to ignore popular opinion and keep at the consequences approach. Short term pain, long term gain. As easy as it might be to just avoid the problem and move it all away, by persevering I would teach R that he can’t have whatever he wants without asking, that lying is wrong, that gluttony is wrong. It would be worth it in the long run when I had built up a three year old who asks permission, who knows that just because something is tempting, it doesn’t mean he gets to just take it. I would be raising a man who is loyal and honest and has patience, and is TRUSTWORTHY.  Either that, or just less calories for me to inhale in the mean time. Win Win.

Tuesday May 20th
Success! No chocolate eaten, one happy little boy reunited with the iPad and lots and lots of praise and play. Oh all of ye of little faith out there! I had an excellent talk with him, explained all the reasons why he can’t help himself, and here are the results. Smug mum alert. I knew I could get through to him.

Wednesday May 21st
Er… May have spoken too soon, if the remains of an ENTIRE EASTER EGG in the bin this morning are anything to go by….
Again, greeted by denial and angry face, and eventual insistence that he was “very very hungry” and then that I was “not at ALL splendid.” (Cue fist in mouth to muffle snort of laughter and maintain stern face.)

If this hadn’t already become a matter of principle, I think I may be ready to move to the ‘move it’ camp. But hey, who DOESN’T love banging their head against a brick wall eh?

We have now enlisted nursery to help, with his favourite Auntie coining the hashtag, “Big Boys Don’t Take Without Asking.” I love it; we’re printing t-shirts.

Not quite, but we have made a fetching sign together, and dare I say it… I *think* he gets the message this time.

Agree with me? Think I’m mad? Feel free to post below. I can only hope this is the end of the saga, but something makes me say “To be continued…”

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Disneyland Paris… through his eyes.

As many of you know, my son has a genetic eye condition known as Nystagmus. Those of you who have met him, will notice his involuntary eye movement, like a pendulum from side to side. You may know from me that he is partially sighted, as it would never be obvious to look at him, he is fiercely capable in almost every situation.

But when we booked to take him, age 3 and a half to EuroDisney in Paris, I can’t pretend I wasn’t nervous. The noise, the crowds, the simple newness of it all can be a recipe for disaster for even a fully sighted child, let alone one who struggles when we move his coat along a peg without sharing the info first. So when the Nystagmus Network, a fabulous charity working to provide support and information for us all, asked me to write a blog on what turned out to be an incredible trip for all of us, how could I refuse?

EuroDisney has an excellent accessibility policy which covers a wide number of disabilities, and the staff are happy to answer any questions you might have about the parks suitability. As a disclaimer, this blog can only comment on visual impairment, and even then only specifically on Nystagmus… And even then, really on my particular little boy. Hello? Any readers left? … Oh hi Husband.

The first thing you need to know before you book, is that you’ll need clear medical evidence of your child’s condition. We used his sight impairment card, and also took a couple of recent hospital reports which detailed Nystagmus and his difficulties with bright lights, crowds, loud noises, and the like. Truthfully they were happy with just the card, and seemed familiar with it too. Go straight to city hall, on the left once you enter the main Disneyland park, and present this evidence, and they will give you a green card, ticked with visual impairment on the back. On the front it will detail how many people the card admits to an attraction. There were three of us, and the card can admit up to six depending on the individual circumstances of the card holder. Note: this counts for all rides and attractions, but not for parades and shows. (See below.)

Once you have the card, you will not have to queue for any ride in either park. Just look for the disabled sign at each ride, (no mean feat for a sight impaired child and his sight impaired mother!) which is usually by the exit, and a staff member will be along to help you. You will need to show your card for each ride, so keep it handy, and try not to lose or destroy it. One extremely capable parent had somehow managed to have hers laminated, a feat which will keep me puzzling for years to come. Does she carry a pocket laminator around with her?

Nystagmus parents will know, that simply the passage of time itself, as well as any new environment is truly exhausting for our wobbly eyed little ones. Standing in queues, waiting in crowds, sometimes for up to an hour, all for a two minute flash of a ride, is either impossible, or not maintainable for longer than a ride at a time. The card meant that we could get on average three times as much done as those without it, meaning that although we would still need to take a long break for him to sleep or rest every two or three hours, it would be after 10 rides rather than 3. There was still waiting, for rides to begin and behind others with a disabled card, but it was usually in an emptier space, often with seating, and never for longer than five minutes at a time.

The other amazing plus was that we could get off and on the same ride sometimes 3 or more times in a row, using the first time round as a ‘getting used to the feelings/sounds’ and then subsequently pointing out what we thought he could see the next time(s) round. The staff were really helpful and lovely about this. Just remember to get off at the end of the ride, and ask the staff where the best place to wait to go on the ride again would be.

One further note on the rides, which we didn’t think of before we left. An unexpected discovery for us was how much our little man enjoyed the roller-coaster kind of rides. Where he was tall enough to go on, these were by far his favourite. Debriefing in the hotel, we think we can understand why. On those rides, it is a purely sensory experience where he can stop working hard to see and just let go and enjoy. Dark tunnels, light outside, fast movement in every direction, no one on the ride knows what’s coming next, and no one can see anything at all, in fact- there is nothing to see! If your LOs are of the brave variety, I would really recommend being courageous yourself and taking them on Thunder Mountain. I rarely see my son that freely enjoying himself, with no hard work on his part whatsoever. Just wait an hour or two after lunch.

A word on the shows and parades. Disney is known for its productions, and there are various shows running all day long. The staff will be as helpful as they can be, but the disabled areas are not close to the stage in all the theatres we tried, (being more set up for wheelchair access etc) and parents do not stop to look at your disability card before elbowing you out of the way with an Elsa wand so that they have the best view for their hyped up candy floss filled youngsters. Once people are seated, they will not move anyone to make space for a visually impaired child.

You may decide that all the shows are just therefore entirely unsuitable, and you will still have plenty to do at the parks. but where you can, present your green card, and bat your eyelashes, and ask at the door whether you can reserve a seat for a later showing,. This also has the benefit of being able to ask for something specific. (For example our son sees far better on the left than right.) Make sure they write the request down, as staff changes often on the admissions desks.

In terms of parades, it’s a little more complicated. The disabled areas give the best views, ensuring no one will be standing directly in your line of vision, but at the end of the day, it’s a parade! It’s fast moving, lots of colour, lots of music and no way to prepare for each new float ahead of time. The characters were brilliant, coming right up to the barriers to shake hands and wave at the kids in the disabled area, which made the parade worthwhile for us, even though I don’t think our LO got a great deal more than that out of it. Coupled with the fact that the card only admits one carer at a time with the child, meaning we had to separate, after that one try on the first day, we skipped the parades and used the time to get food and drinks where the queues were shortest. The night time Disney Dreams show in particular is late at night, full of loud noises, fast changing pictures, confusing colours and large crowds. Just to make things even easier, you can not stand anywhere remotely close due to the fireworks. Our son immediately asked us to “turn it off” and spent the remainder of the show in a frightened cuddle.

The Disney hotels, Cafe Mickey, and various ‘character meets’ around the parks meant that I personally didn’t feel like he was missing out by not seeing the parades, but it’s definitely something to bear in mind when planning your trip, especially with fully sighted siblings in tow.

I was incredibly impressed with both Disneyland Paris itself, and the accessibility policies they had in place. A number of decades ago, children like my son would not have been able to walk through the park gates without a meltdown of epic proportions. We would have managed maybe two rides a day, and certainly no shows or parades. The whole experience would have been miserable. We are extremely lucky to live in a time where disabilities of all kinds are recognised and worked around. and EuroDisney are certainly to be commended for their work to provide equal opportunities for all visitors.

As with any experience in life, there were elements of our stay which were out of our son’s reach, but these largely went unnoticed. Thanks to a little organisation on our part, and incredible effort and thought from the magic of Disney, the wobble in his eyes was far outweighed by the wonder.

Let’s Be Honest

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For a brief period during university, I had my only ‘student’ job, face to face fundraising on the streets of London, or as its more commonly (and delightfully) referred to as, charity mugging, or chugging.

It taught me a lot. About the business side of charity, about the psychology of working for a good cause, about the actual charities I was working to raise money for. But most it all, it taught me about lies.

Like many aspects of life, it is best summed up by quoting Chandler from Friends, this time as he explains to his wife: “It’s always better to lie, than to have the complicated discussion. … except with you!”

There is no doubt that lies are convenient. Need to get off the phone? Oh, my battery is dying. Need to get out of an awkward conversation? Hang on, I just remembered I have to meet someone. Forgot to reply? I never received your email.

In psychology, these kind of lies are referred to as ‘Butlers’. They stand between you and the person you are talking to, as a middle man, making the excuses for you,. Lies are essentially buffers so that you don’t have to hurt people’s feelings by telling the truth, which is more often than not simply, “I don’t want to talk to you.” And socially, there isn’t really anything wrong with that. If we went around telling everyone how boring their boyfriend drama was, or how little time we wanted to spend hearing about their kids new nursery…. We wouldn’t have many friends left to lie to.

But these white lies have become human nature. And what surprised me so much as a chugger, was how many times I was lied to daily, and for no social convention whatsoever. After all, I was never going to see these people again. I wasn’t a relative, a friend, or even an acquaintance. We share no mutual friends, I don’t know what area they live in or even their first names. We are as much strangers as you can be with another human (who you actually know exists) and we will probably spend no more than 3 or 4 seconds out of our lives in each other’s company. Additionally, I wasn’t asking them a personal question, or for their opinion on my choice of footwear or my haircut. No one needed to worry about offending me. Fundraisers are very clearly working, and while often need the sign ups quite desperately to hold onto their jobs, are rarely if ever personally offended by the 99% of people who keep on walking by. (To put this into perspective, if we achieved around 4 or 5 sign ups between 10am-6pm, the day was considered extremely successful.)

And yet without any understandable psychology behind it, 9/10 times people choose to lie. So let’s put aside all the BS for a minute and just be completely honest. I’m off duty, I’m out of the fundraising game, and to be really straight with you- I just don’t care. But whether you are reading this on a tablet or a phone, or on a computer or a laptop, at home or at work, here is a fact. The amount may vary from household to household, but we can all afford to donate per month to any given charity.

You just don’t want to.

We said it! It has been said. We’d rather have the beer with our mates, the coffee with a friend, the subscription to the magazine, the cleaner or the childcare or the wrap from the cafe across the street. In some rare cases, it may take more of a sacrifice, but we still choose to have the extra item on the grocery shop or the variation in our wardrobe choices.

And here’s the amazing thing, no one cares! No one minds. In fact, everyone agrees! We all make choices about our money and where we want it to go. These are all totally reasonable choices, necessities or extras alike. We all believe that we should treat ourselves, or our kids or friends, often before we look elsewhere. And every human on the planet weighs up whether something is a good enough cause to be worthy of our time and certainly of our money. After all, the greatest philanthropist in the world does not give arbitrarily to anyone who asks.

Everyone has their own personal soft spots, myself included. (I wouldn’t go giving me any kind of precious object to look after for example, without being aware I may well pawn it at some point to buy a homeless teenage boy a three course meal.) I am clearly not a cruel heartless person. But I will freely admit here in front of all my millions of avid readers, that I would rather go to Starbucks than save any kind of animal species on a monthly basis. If you stop me in the street and expect me to start welling up as you tell me about abandoned puppies, you have severely misjudged your audience. I am already planning on asking for extra hazelnut syrup.

And before I had worked in face to face fundraising, I probably would have done exactly what you do. Pick up an imaginary phone call, bark out that I’m late for a meeting, tell the fundraiser that I would stop and talk to them on my way back down the road. Or on the off chance that they got me in conversation for more than those few seconds, argue that I really couldn’t afford even £2 a week, which was such a shame as it sounded like an excellent cause. I would look it up on the internet when I got home, and discuss it with my other half. Did they have a brochure or a card?

Now, I save us both some time and say something revolutionary. “No thank you.” If I’ve started talking too early and don’t have to break my stride I may add, “I’d be wasting your time.”

It costs nothing, it doesn’t offend, and best of all-it’s the truth.

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Great Loss

72 years ago, a woman got married. She stood up in front of her family and her friends, and was sworn to a man for ever and ever. A ring, simple, plain, was placed on her finger. And she never took it off.

The marriage lasted less than a year. The woman became a mother, although the man left before he had the chance to be called father. This mother, raised her son by herself, and wore her ring to protect her from the cold stare of social stigma, and perhaps, in some small way to make her feel less alone when she remembered how she had lost the man she’d thought she’d have forever.

The child grew up, and grew used to the ring on his mothers finger. Perhaps took it as a small sign of her vulnerability in a world she faced alone. Bringing up a son was no easy job, especially without a partner to lean on.

Eventually, the child became a man, and got married too. He placed a ring on a lady’s finger, but was soon alone again. A second, a third time he tried to make those vows. But it was not to be, and he was soon alone again, this time forever. But he had not left before he had the chance to be called father. And his child, his daughter, they had each other. And he loved her more than he ever learned to love any other in the world.

The woman, now a Grandmother, looked on at her son, holding her granddaughter, and knew that the ring on her finger had not been for nothing, it had been for everything.

12 years later, the grandmother died, and the father, now as good as an orphan, only had his daughter in the world. He said goodbye to his mother, and took the ring off her finger, placing it onto his own. He wore it forever, perhaps as a way to feel less alone when he remembered the woman who had faced the worst of the world for him.

And the father and his daughter had each other. And the daughter, she grew used to the ring on her fathers finger, and took it as a sign of strength that he made his own way in the world without family to guide him. Bringing up a daughter was no easy job. Especially without a marriage to lean on.

Six short years later, the man was taken from this world, and was lost to his daughter forever. She said goodbye to her father, and took the ring off his finger, placing it onto her own. She wore the ring every day, perhaps as a way to remember the man who loved her most of all, to feel less alone when she couldn’t feel him watching over her or when she realised that she’d lost the man she thought she’d have forever.

And the daughter grew up, and on her own wedding day she threaded the ring onto a chain, and placed it as a necklace over her heart, and danced at her wedding with over 65 years of history, and failed marriages, and lost love around her neck. Once the day was over, the ring was moved from chain back to finger, and there it remained. She wore it every day, while she became a mother to a child whose father never strayed more than a few hours from home and his family, while she thanked God for her marriage and her family and her life, and most of all for the chance to wear that ring on behalf of both her father and grandmother, with true happiness rather than loss.

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I wish I could say the ring remained there forever, but tonight, I lost my grandmothers wedding ring. People who know me would tell you that I’m not very materialistic, and I don’t care much for sentimentality over objects. I own almost nothing of my late fathers, and I neither expect nor want my children to hoard my possessions zealously after I pass away.

But this ring.

This ring is my family history, and so much more besides.

The night I lost my grandmother, I cried like a child because I was a child. I hadn’t experienced the finality of death in any real way, and I couldn’t believe that she wasn’t going to be there the next morning.

The night I lost my father, I cried like a child because I was his child. I didn’t, and often still don’t know how to make my way in this world without his voice at the other end of the phone or his unwavering love to guide me.

Tonight, I am crying like a child for a third time. It’s illogical, and unresolvable, but without this object, this piece of metal, I feel like the child all over again. Lost without a talisman to protect me. Without the very last tangible link to my departed family, I feel alone.

Why Kanye is a moron, and other stories.

“I am not a fan of books. I would never want a book’s autograph. I am a proud non reader.”

At first look, these seem like the words of a idiot. But after closer inspection, Kanye West is so much more than just your average moronic individual.

Being a ‘fan’, wanting an ‘autograph’, that language means more today than it ever has done. We have more access to celebrities, more ways to stalk them, more insight into their lives and their comings and goings than any generation before us. We aren’t standing in the front row of a concert, waving a “marry me” banner and screaming ourselves hoarse. We’re looking up info on the internet, scouting out our celeb’s home on google maps, climbing the tree outside their window and whispering subliminal messages while they sleep, carefully crouching in that blind spot between the security cameras, to film our own foundation for a heavily iMovie edited fan fiction blog.

For a celebrity himself to talk about being a fan, wanting an autograph, being proud, is dangerous language to use. If Kanye believes one tenth of the things he says about himself, being the next Nelson Mandela, the next Steve Jobs, the next sliced bread, he must be aware that he has influence. Influence over young minds and actions alike. To make the idea of being a ‘fan’ of books into a joke is not only ignorant to the billion dollar industry he is bad mouthing, but also putting an idea into motion, that books are not cool, that reading is not worth pursuing or getting excited over.

Mid twenties, I’m past the age of infatuation with celebrities, and like any generation worth it’s salt, I like to think that even if I were a teen right now, the so called music of today would not be worth my adoration. Sorry, can anyone understand what Tinchy Stryder is saying? Can someone tell Justin Beiber to get a haircut? Don’t One Direction have homework to be getting on with?

But hyperbole aside, I’m not so far gone that I don’t remember what it felt like. I had massive posters of BSB and Boyzone on my wall, and was secretly sad when I found out Steven Gately was gay. (Like that was the main obstacle to us living happily ever after). I cut out pics of unlikely teen heart-throbs Evan and Jaron (anyone?!) and stuck them in clumsily drawn hearts. I religiously read articles and interviews in Shout and Cosmo girl, just in case I ever bumped into Craig David and could wow him with my knowledge that his favourite ice cream flavour is vanilla. (In case he wasn’t already aware.)

But nowadays, I fan girl in a different way. Lionel Shriver spoke at this years London book fair, and I got there an hour and a half early to save myself the best seat. I tweet authors obsessively, and get almost unbearably excited when they reply. If I had to write a list of the books I would love the autograph of? Let’s just say we would be here a while. Books have changed my life, have made me cry far more than any ex-boyfriend, have brought me to tears of uncontrollable laughter, and have taught me more about myself than any one person. I would be proud to cover my notebooks with “Mrs Elisheva Books”, heart-ing the i, and cutting out glossy pictures of libraries across the globe. Just try and stop me from stripping naked and hiding out in a book’s trailer for when the show finishes.

“I am a fan of books, I would most definitely want a books autograph. I am a proud reader.”

I don’t expect my opinion to make the youth of today run off to Foyles, and I’m sure that some of my childhood ‘heroes’ are also non readers, just like Kanye. You don’t have to be a bookworm to write or perform great music. Certainly not to write popular music. But the point is, I don’t know whether Ronan has a volume of short stories on his bedside cabinet. I’m not sure if the A1 boys like a bit of Bronte after a long day. They never lifted themselves off the 2D background of my bedroom walls to tell me. To make me less literate, to encourage me to learn less, to take less notice of better minds than my own.

Well done Kanye! you don’t read. Frankly, no one is surprised to learn that you’re not a Dickens fan, or even a Katie Price fan, with your almost agonisingly poor verbal and written skills. But you are self aware enough to know that people are listening to you, people are emulating you, for the same reason that I know that Aaron Carter’s middle name is Charles and he has a twin sister called Angel. You’re famous. And unlike many other celebrities who say they don’t want the responsibility of being a role model, you actively seek it out. It’s not just fame you’re after. “I got the answers, I understand culture, I am the nucleus.” Every word out of your mouth is another sound bite or bumper sticker for kids looking for guidance. You WANT to be a role model.

It’s an inescapable part of celebrity in this day and age that fame will almost inadvertently turn a person into a role model of sorts, whether positive or otherwise. But this kind of subtle propaganda against literacy and reading is in many ways more dangerous than any dry humping of a wrecking ball. Your average teenager might think Miley Cyrus is cool, but the furthest the adoration is likely to go is a bit of harmless twerking at a school disco. Fashions change, trends come and go, and teenage girls grow up and realise that without the help of an airbrush, they really don’t have the legs for it.

But a fatwa on books? On reading? On one of the fundamentals of any form of education?

Careful Kanye, or the next generation of easily swayed youth will be incapable of reading your mindless drivel to start wi… On second thoughts, as you were.

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That Moment

When you make her laugh and no one else could, when you see him smile across a crowded room before you’ve quite caught his eye. When you write that thought down, in fear of losing its memory, when you solve that puzzle first out of the group. How you interpret that comment as a compliment, so that no one gets hurt, how you change your mind last minute and save the day. As you remember why you loved your career all along, as you turn that final page and sit in silence. He grips your finger so tightly, that tiny person you gave life to, she asks you not to leave her alone as her breathing becomes shallow.

People like to talk about how small they feel, how infinitesimal they are in relation to the world, like that’s comforting. And maybe it is, in terms of a higher power who looks after such incredibly complex features of the universe as the tides and the planets so therefore cant have any trouble keeping you safe and happy. And maybe by feeling so small, so insignificant, your troubles become insignificant too.

But I prefer to think of those moments. That come up so rarely, but remind you, unquestionably, that you are not small.

You make an immense difference, at least in that instant, to another person. You have set into motion a sequence of events;. You’ve thought of something new, something real. That’s what’s comforting to me, the mind blowing realisation that you are one of billions, and yet you are one. In that moment, in your moment, you belong to people, you exist, and you matter.

Just don’t mention the edible glue.

I never had birthday cakes. As a kid I mean. I admit, it’s not the most often cited form of child abuse, so I can imagine you’re finding it hard to drum up appropriate sympathy. I doubt the NSPCC often whisper in hushed tones about birthday cake neglect as they try to rehouse badly cared for children. “Y’know, I heard he had to make do with cupcakes. And they weren’t even chocolate. I shudder to think.”

But it’s true nonetheless. I think the word ‘never’ might be a little harsh, as I have a couple of photos pre the age of 5 of me standing in front of store-bought rectangular monstrosities with calligraphy Happy Birthdays and chalky icing numbers that would never taste as good as they looked. After that age, I remember the odd year where I could sneak a supermarket-bought chocolate cake underneath the rest of the shopping in the trolley, once we’d checked for a V for Vegetarian of course. Our aim in life being to appear to the world as ultra-orthodox even though we were in reality nothing of the sort, these had to be eaten quickly and stealthily, and the trappings thrown in the outside bin so that no passing visitor (like my brother for example) would see that it wasn’t ‘strictly kosher.’ Eating cake in secret wasn’t something I would ever learn to enjoy, the self loathing pretty much overriding any of the butter-creamy goodness they ever had to offer.

So perhaps it’s more honest to say I never had the birthday cake ‘experience.’ No candles to blow out, no friends singing embarrassingly at me, no parents up to their elbows in fondant the night before the big day, cursing at Thomas’s funnel for refusing to stand upright. If I’m honest, it’s that last part that bothers me the most. I’m not the most creative person in the world, and a step by step recipe is going to be the least of my expectations if I’m going to make anything half recognisable, but making my son a birthday cake every year is one of the ways I say, “I know you.”

I know that before you were one, and you couldn’t even see our faces, reading the Gruffalo out loud was the only thing that could calm you down, so committing the entire book to memory was the least we could do for you. We spent the best part of that year regaling audiences across coffee shops and shopping malls and London transport whenever you were cranky. I’m pretty sure a couple people missed their stops to find out how that crafty mouse escaped consumption.

Before you were two, and you began to enjoy the world, you learned to reach out and have your own effect on your surroundings, lifting flaps and beaming at the results of your own hands. We read Dear Zoo over and over again, buying every version we could find. The devil makes work for idle hands must be based on a toddler, as keeping a book in your reach was the best way to keep our house intact.

This year, almost three, and you are making your own sentences, demanding to ‘read’ books to us, and with the patience given at birth (not mine, his) we listen to your babble with the odd word thrown in for good measure.  Each step I follow in making your cake this year is my way of showing how proud I am of your achievements.

I met a five year old recently who had been given a guitar cake for her birthday. “Amazing!” I exclaimed in my special over excited voice I reserve for children and the mentally challenged. When she shrugged I decided to probe further. “So how long have you been playing guitar?”

“I don’t.” She replied forlornly. “I play piano and recorder.”

Hello nspcc? It’s me again, I don’t think you’re understanding the gravity of the situation. She plays recorder, and the cake was in the shape of a GUITAR. That’s not even close frankly. It’s not even a wind instrument… .

It was like looking in a mirror. Over the top or not, slightly crazy or otherwise, this nugget of ‘I don’t know you’ from my own childhood has stayed with me. And so, I’m a little bit obsessed with birthday cakes. Weirdly enough, the birthday itself I can take or leave, buying random gifts last minute on Amazon, and choosing cards based on the ‘least awful one in the bargain bin’ criteria. (All I’m saying is, if I have to buy a five pound card, you aren’t getting a present. Or a card for that matter.) I’m not even a fan of the happy birthday song, as frankly I think if we all put our heads together we could do a lot better both musically and lyrically, but damn-it if I’m not going to get you double figure ‘likes’ on your cake photo on Facebook.

So it’s definitely not birthdays in general I feel passionately about. Although I’m glad I have one.  I once knew a man who had no idea when his birthday fell, or even how old he was. This to me was extremely newsworthy.

But.. but… how do you fill in forms? How do you sign up to things online? What’s life like without that oddly satisfying feeling of seeing your birthday written down on a pint of milk or a movie poster, like a private joke between you and the universe?

He seemed unperturbed, but I wasn’t interested in letting this go.

How did you ever get employed anywhere?!

“Ah, Mr Smith, lovely to meet you. Please do sit down and let me take a few pieces of basic information before we start the interview.”
“Sure, go ahead.”
“Full name?”
“Mr Horatio Brandon Smith.”
“Gender..? Male… Good, UK citizen?”
“Oh yes, for over three decades now.”
“Excellent. Date of Birth?”
“Ah… well actually… I’m not sure.”
“Sorry, I said date of birth. -pause- your birthday.”
“Yes, I don’t actually have that information to hand.”
“How about year of birth at least? … -awkward pause-  How OLD are you?”
“Cant help you there. Somewhere between 50 and 60 I would guess?”

It blew my mind. I mean, when does he have cake with his name on? Just randomly when he feels like it? Has he chosen a day in replacement? If so, how did he choose it? Statistically most people are born in August. Would he go with probability, or purposely choose a less likely month for fairness sake? I still have so many unanswered questions! Unfortunately, we never traded contact info, and it’s hard enough to track people down, let alone without a date of birth to go by….

This generation, birthdays have become a much bigger deal, with endless yummy mummies making their fortune with at-home bakeries sure to make even the pickiest birthday brat girl beam. And if like me, you’re a little bit hysterical and have based your worth as a parent on making the cake from start to finish by yourself, it’s much easier to be creative. Spending a mortgage payment at a shop called Sugar Shack, which is basically baking erotica, and armed with a step by step recipe pilfered from the Internet, I am now in possession of all the cheats necessary to make me a temporary Nigella. Edible markers, edible glitter, edible paint… Another plus of Sugar Shack is the ease you can convince your other half it’s a necessary investment just by reading out the names in your shopping basket. (Just don’t mention the edible glue.)

I’m not naive about the likely reception to my efforts. At the grand unveiling, I fully expect more praise from old high school friends I haven’t seen in a decade than I do from the eponymous hero of the cake itself. I imagine R looking briefly at the masterpiece, sussing it’s food and shouting ‘eat it!” before descending into a full blown tantrum. But that’s part of the magic for me. If a parent had made me a cake with half the effort that this one is going to take, I would probably be a blubbering mess of gratitude. I actually think it would be too much love to take. And while I do love cake, I’m aware that’s not a normal reaction.

Don’t get me wrong, as they grow old enough to understand both the concept of effort and the hassle of food colouring, I fully expect a heartfelt thank you for my yearly forays into domestic goddess mode. But I like the idea that birthday cakes will be the norm. Along with dinner on the table, bed times, cuddles, help with homework, and any number of other things I never had.

Probably the way my grandchildren will feel about expensive birthday cards.

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